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Author Topic: Huntington's Chorea  (Read 5209 times)

Offline pearson

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Huntington's Chorea
« on: Friday 11 November 05 10:39 GMT (UK) »
Hi all
I am trying to trace back a disease in my family called Huntingtons chorea.
I have hit a dead end now WELLS family from Egremont had the disease maybe from mid 1800s later than that it must have come from a wife TWENTYMAN, WILD, GLAISTER?
It would be great to hear from any one who knows of the disease in their family that have come from the Whitehaven area of Cumberland.
Also any tips or help would be much appreciated.
Karen


SKOULDING, Norfolk and Northumberland
GAIR,LENNON,HEDLEY,WILSON,PEARSON,SMITH,EVANS,ROSE, ROLLO Northumberland
PEARSON,Staffordshire
WELLS, GRUNDILL Cumberland

Offline Jones the Search

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Re: Huntington's Chorea
« Reply #1 on: Friday 11 November 05 10:52 GMT (UK) »
Found this site it may be of interest to you.

http://www.thesahara.net/huntingtons_disease.htm

Patricia
Short: Lincolnshire; India;London;Scotland; Limerick; Belfast
Lane: Surrey/London/Northampton/Hereford/Cheshire/Staffordshire
Occomore: Hampshire; London
Heaton: Yorkshire; Derbyshire;London
Cutts: London;Derbyshire; Yorkshire;Lancashire
One Name Study -  OCCOMORE
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Offline pearson

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Re: Huntington's Chorea
« Reply #2 on: Friday 11 November 05 11:03 GMT (UK) »
Patricia
Thanks for that. I don't want to sound rude but I am not looking for info on the disease. I know all I need to know as it is still in my family.
Thanks any way
Karen ;)
SKOULDING, Norfolk and Northumberland
GAIR,LENNON,HEDLEY,WILSON,PEARSON,SMITH,EVANS,ROSE, ROLLO Northumberland
PEARSON,Staffordshire
WELLS, GRUNDILL Cumberland


Offline Jones the Search

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Re: Huntington's Chorea
« Reply #3 on: Friday 11 November 05 13:38 GMT (UK) »
Sorry. thought this link might have led you on further.
Patricia
Short: Lincolnshire; India;London;Scotland; Limerick; Belfast
Lane: Surrey/London/Northampton/Hereford/Cheshire/Staffordshire
Occomore: Hampshire; London
Heaton: Yorkshire; Derbyshire;London
Cutts: London;Derbyshire; Yorkshire;Lancashire
One Name Study -  OCCOMORE
~~~~~~~~-------
Census information is Crown Copyright, from www.nationalarchives.gov.uk

Offline loo

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Re: Huntington's Chorea
« Reply #4 on: Friday 11 November 05 16:50 GMT (UK) »
Perhaps there is a self-help organization, or other charity you or someone in your family could join, and learn about other families with this problem, and then you could trace them back and see if there's a connection.  It would be interesting to know how narrow the area would be where it first came from, or whether it came from several original places.
It's a longshot, but, if you're determined, it might get you somewhere. 
The only people I know of who had it were folksinger Woody Guthrie and, I believe, his son Arlo.  Arlo is still living.  I have no idea where they came from originally though.
ARMSTRONG - Castleton Scot, NB, Westminster Twp
BARFIELD - Nailsea & NL
BRAKE - Nailsea
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CANDY - M'sex, Deptford
CLIFFORD - Maidstone
DURE(E) - France, Devon, Canada
HALLS - Chigwell
KREIN, Peter
LEOPOLD - Hanover, London
LATTIMER, MAXWELL - lightermen
MEYER - Lauenstein
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SWANICK - Co.Mayo & Roscommon; Ontario
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WW1 internments

Offline JAP

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Re: Huntington's Chorea
« Reply #5 on: Friday 11 November 05 23:55 GMT (UK) »
Hello Karen,

Are you aware of the Rootsweb Huntington's list?

Click here for the Rootsweb list

It does not seem to be particularly active but, if you have not already done so, it would probably be worth searching its archives and posting your own information.

Best regards,

JAP

Offline terryc

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Re: Huntington's Chorea
« Reply #6 on: Tuesday 16 January 07 13:29 GMT (UK) »
I have WELLS from the Whitehaven area around 1850s on their way to Australia (Geelong VIC) but I do not know of any Huntington's Chorea in the family. An Elizabeth WELLS married into the Errey line, but the Erreys were famous for bad chests (perhaps too many cousin marriages).

I am not sure where exactly the WELLS/WILEY combo arose from in Cumberland at present. Just getting back to Cumberland from Australia was a major success.

I will keep this in mind and get back if anything crops up.
Baker, Samuel: ???, Somerset,  England, before 1840.
Collins, James: Pedwell, Somerset, England,  c1787.
Hambly, William: ???, Cornwall, England, c. 1823.
Malcolm, Thomas: ??? Stirling, Scotland, before 1875.
Pitt, George: ???, Worcester, England, before 1856.
Wells, David: Whitehaven+, Cumberland, England, before 1850.
Wiley, Martha: Whitehaven+, Cumberland, England, before 1850

Offline cass

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Re: Huntington's Chorea
« Reply #7 on: Sunday 18 March 07 20:54 GMT (UK) »
I don't know if it was in my family but I remember my mother talking to me as a child about 'St Vitus Dance' which I believe is another term for Huntingtons Chorea. I can't remember why she should be talking about it so maybe there was a family history. She came from Workinton. Cass
Cumbria - Whitfield, Fagan, Murphy, Sloan, Weighman, Ousby, Brunskill
Hampshire - Alford
Ireland - County Down - Fagan, Murphy
Kidderminster - Whitfield

Offline Subaru

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Re: Huntington's Chorea
« Reply #8 on: Sunday 18 March 07 21:56 GMT (UK) »
Woody Guthrie was born in Oklahoma.  He inherited Huntingtons from his mother who was born in Cansas.

I loved Alice's Restaurant (Arlo Guthrie), and have always called camper vans by "VW Microbus" like in the song.

I don't know anything about Huntingtons, apart from it is very rare.

Rosemary